About MG Wisconsin
About Us
Support Meetings
Support Meetings
At the MG Wisconsin, our mission is to improve the lives of those diagnosed with Myasthenia Gravis by providing essential resource information and support. Previously known as Northeast Wisconsin MG Support Group, we are still led by Niki Grossheim. Niki has been a support leader for over 10 years. She is a national myasthenia gravis
At the MG Wisconsin, our mission is to improve the lives of those diagnosed with Myasthenia Gravis by providing essential resource information and support. Previously known as Northeast Wisconsin MG Support Group, we are still led by Niki Grossheim. Niki has been a support leader for over 10 years. She is a national myasthenia gravis ambassador, fundraising coordinator for the MG Holistic Society and person living with myasthenia gravis for over 20 years. She brings a ton of lived experience to the group.
Support Meetings
Support Meetings
Support Meetings
Our community support meetings are open to everyone. Bring your family, caregivers, and friends. We welcome speakers who have wellness information to share.
When: Second Thursday of each month at 6PM (except July & August)
Location: Alleluia Lutheran Church
6725 Elmro Road, Greenleaf, WI 54126
Hybrid meetings also available via Zoom
Contact: Niki@MGHolisticSociety.org
Our Programs
Support Meetings
Our Programs
In 2023, Our group became part of the Myasthenia Gravis Holistic Society patient support arm. Thanks to this change, we are able to offer tangible resources with our Hope's Pantry for people diagnosed with myasthenia gravis and their family members. We also offer a variety of educational opportunities, empowerment retreats, awareness days, and community gatherings.
Myasthenia Gravis
Myasthenia Gravis ( my-us-THEE-nee-uh GRAY-vis) is a rare chronic autoimmune neuromuscular disease that impacts the voluntary muscles. Myasthenia Gravis literally means grave muscle weakness. Unlike other diseases we haven’t seen a modern day celebrity come out and say they have myasthenia gravis so you are our celebrity, warriors and heroes.
EVERY person diagnosed with myasthenia gravis experiences symptoms differently! This is why you may hear it referred to as the snowflake disease. For this reason, treatment for everyone diagnosed with myasthenia gravis is different.
FACTS:
Myasthenia Gravis is not contagious. It is most commonly found in men over 60 and women under 40. Myasthenia is one of over 7000 rare diseases. It is often overlooked in BIPOC communities.
TESTING:
Myasthenia Gravis is most commonly diagnosed my checking for abnormal levels of acetylcholine receptor antibodies (AChR), muscle-specific tyrosine kinase (MuSK) or low-density lipoprotein receptor related protein 4 (LRP4). There is also another type of antibody called Agrin that you may be screened for.
Double-seronegative Myasthenia Gravis (dSNMG)
There is also a whole community of people who do not have any currently known biomarkers however have all of the classic symptoms of myasthenia gravis. We know it is frustrating however new treatments are being developed.
A repetitive nerve stimulation or single fiber electromyography (EMG) may be used to detect impaired nerve to muscle transmission may be also considered. This is an extremely uncomfortable test and hopefully you only have to get it done once.
Some cases of MG are diagnosed from having a chest CT or MRI which shows if there is a tumor on the thymus gland called a thymoma. Don't panic as these tumors are usually non cancerous. Having this surgery stops the production of autoantibodies that attack the muscle nerve connection. About 15% of MG patient develop a thymoma. Surgical intervention may be required. Weigh your options of technique used. Ask your doctor to explain transcervical, transsternal and videoscope based on your individual case.
Lastly, a neurological examination may reveal decreased muscle strength or impaired eye movement. Some people experience MG only in their eyes while other experience more generalize symptoms.
Cure
While there is no known cure, people diagnosed with myasthenia gravis can live a full life with lifestyle modifications and the recommended treatments directed by their physician. You are NOT alone!
Click on image to watch our MG Video
Women's Empower Me Retreat
Women's Empower Me Retreat
Women's Empower Me Retreat
Our Women's Empowerment Retreat are a community favorite. Our 2025 dates are 9/12/25 to 9/14/25 in WI. All participants must agree to shared lodging arrangement in order to attend. You must also be in stable health. We have relaxing yet educational program scheduled.
Registration link coming soon
Volunteer
Women's Empower Me Retreat
Women's Empower Me Retreat
We are currently seeking volunteers for our MG Awareness Day event on June 21, 2025. We also have a need for someone who is proficient in zoom to assist with meetings and event.
email: Niki@mgholisticsociety.org
Advocacy
MG Community Meeting
MG Community Meeting
Contact your state and local representative and tell them you need their help! We are seeking support for:
- S.1375/H.R. 830, HELP Copay Act
- S. 652/H.R. 2630, The Safe Step Act
- Full Funding of the Office of Autoimmune Disease Research UNDER the National Institute for Health
MG Community Meeting
MG Community Meeting
MG Community Meeting
Don‘t miss our annual holiday gathering! Enjoy a catered dinner and our raffle giveaway.
Event Photos
Help Our Cause
Shop for a cause and enjoy great myasthenia gravis awareness items for you or your home. These items make great gifts. Proceeds help support our research efforts. New items added monthly.
